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“Words mean more than what is set down on paper. It takes the human voice to infuse them with deeper meaning.”

- Maya Angelou

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  • Volunteer:

  • Come as scheduled and on time.

  • Carry out your tasks efficiently and honestly.

  • Commit time for the work.

  • Accept guidance and decisions of the volunteer coordinator.

  • Participate in orientations, trainings and meetings.

  • Keep internal information confidential.

  • Fundraising.

  • Handling money.

  • Organizing or helping at events.

  • Leading or managing a group.

  • Providing advice.

  • Information and counselling.

  • Other practical help.


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  • Must be able to provide your time;

  • Have a passion to help with the fight;

  • Most importantly be Ready to move into action;

  • Listening to all parties in a believing and nonjudgmental manner;

  • Clarifying issues;

  • Suggesting options;

  • Documenting;

  • Locating and providing information;

  • Modeling appropriate behaviors and boundaries;

  • Speaking on the parent/child’s behalf when they cannot speak for themselves;

  • Helping the family with written correspondence or phone calls;

  • Attending meetings;

  • Problem solving;

  • Educating families;

  • Assisting parents in locating other supports;

  • And following up


  • Seizure awareness

  • Seizure training

  • Safety devices

  • S.U.D.E.P.

  • Disparities

  • Stigma

  • In Person Events

  • Webinars

  • Medication importance

  • Resource materials Support

  • Seizure Maintenance



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