“Words mean more than what is set down on paper. It takes the human voice to infuse them with deeper meaning.”
- Maya Angelou
VOLUNTEERING
-
Volunteer:
-
Come as scheduled and on time.
-
Carry out your tasks efficiently and honestly.
-
Commit time for the work.
-
Accept guidance and decisions of the volunteer coordinator.
-
Participate in orientations, trainings and meetings.
-
Keep internal information confidential.
-
Fundraising.
-
Handling money.
-
Organizing or helping at events.
-
Leading or managing a group.
-
Providing advice.
-
Information and counselling.
-
Other practical help.
VOLUNTEER APPLICATION
ADVOCACY
Advocates:
-
Must be able to provide your time;
-
Have a passion to help with the fight;
-
Most importantly be Ready to move into action;
-
Listening to all parties in a believing and nonjudgmental manner;
-
Clarifying issues;
-
Suggesting options;
-
Documenting;
-
Locating and providing information;
-
Modeling appropriate behaviors and boundaries;
-
Speaking on the parent/child’s behalf when they cannot speak for themselves;
-
Helping the family with written correspondence or phone calls;
-
Attending meetings;
-
Problem solving;
-
Educating families;
-
Assisting parents in locating other supports;
-
And following up
Education:
-
Seizure awareness
-
Seizure training
-
Safety devices
-
S.U.D.E.P.
-
Disparities
-
Stigma
-
In Person Events
-
Webinars
-
Medication importance
-
Resource materials Support
-
Seizure Maintenance
GET INVOLVED
EDUCATION